It’s the time a parent of a child with autism has on their minds since diagnosis: transition into adulthood. Of course, it’s a pivotal time for any young person, but for autistic children, it often comes with unique challenges and considerations.
Navigating this period requires understanding a host of terms and concepts that may be new to you. Having a solid grasp of these terms can help you advocate for your child and ensure they have the resources and support they need to thrive.
With that in mind, we have put together a glossary of essential terms and concepts to guide you through this important transition.
- Vocational Rehabilitation
Vocational Rehabilitation services provide job training, career counseling, and placement assistance for individuals with disabilities. VR programs often help young adults with autism explore careers, develop workplace skills, and find meaningful employment.
- Activities of Daily Living
Activities of Daily Living refer to the basic self-care tasks that individuals need to manage in daily life, such as cooking, cleaning, budgeting, and personal hygiene. For autistic individuals, learning and mastering these skills is a critical step toward independence.
- Guardianship
When a child with autism reaches the age of 18, they are legally considered an adult. Parents may need to explore guardianship or supported decision-making options if their child requires help managing finances, healthcare decisions, or legal matters. Supported decision-making is a less restrictive alternative that allows individuals to make choices with guidance from trusted supporters.
- Postsecondary Education Programs
Postsecondary education for autistic individuals doesn’t have to follow the traditional route. Many colleges and universities now offer specialized programs or services designed to support neurodivergent students with academics, social skills, and independent living.
- Employment Supports
Programs and organizations that offer employment support focus on helping young adults with autism find and maintain jobs. These may include on-the-job coaching, workplace accommodations, and mentorship opportunities to build confidence and skills in professional settings.
- Self-Advocacy
Self-advocacy is the ability to understand and communicate one’s needs and rights. Teaching your child to advocate for themselves—whether it’s asking for accommodations at work or explaining their needs to others—empowers them to navigate adulthood with confidence.
- Healthcare Transition
Moving from pediatric to adult healthcare can be a complex process. It’s important to find medical professionals who understand your child’s unique needs and can guide them through managing their health as an adult, including mental health support if needed.
- Independent Living Services
Independent living programs or services help young adults with autism develop skills to live on their own or with minimal support. These services may include training on budgeting, meal preparation, transportation, and managing household responsibilities.
- Financial Planning and Benefits
Understanding financial resources is essential. Programs like Supplemental Security Income (SSI), Social Security Disability Insurance (SSDI), and ABLE (Achieving a Better Life Experience) accounts can provide financial support for your child while promoting independence.
Transitioning into adulthood is a major milestone, and having the right knowledge and resources can make all the difference. By understanding the terms and tools available to your family, you can better prepare your child for this exciting new chapter.